22q11.2 – Care During COVID

22q11.2 – Care During COVID

Shining a Light on 22q11.2

By Children's Hospital of Philadelphia

Date and time

Sunday, November 22, 2020 · 8am - 12pm PST

Location

Online

About this event

Please join us Nov. 22 for Care During COVID-19, a special educational symposium for families and caregivers of patients with 22q11.2 deletion and duplication.

This event is part of the global Light the Night Red awareness campaign for Chromosome 22q11.2 deletion and duplications.

Agenda:

  • 11:00 a.m. Setting the Stage- Donna McDonald-McGinn, MS, CGC
  • 11:15 a.m. One Patient’s Perspective on 22q11.2 Awareness Day – Storming the State House in Pennsylvania - Hannah Schilling
  • 11:30 a.m. Managing Anxiety, ADHD and Headache- Madeline Chadehumbe, MD
  • 12:00 p.m. Generalized Behavioral Challenges- Raquel Gur, MD, PhD
  • 12:30 p.m. Educational Obstacles- Ed Moss, PhD
  • 1:00 p.m. Speech and Language Therapy- Cindy Solot, MS, CCC
  • 1:30 p.m. Integrative Approaches to Managing Stress- Maria Mascarenhas, MBBS
  • 2:00 p.m. Immunodeficiency in the Face of COVID- Kate Sullivan, MD, PhD
  • 2:30 p.m. Closing Remarks- Donna McDonald-McGinn, MS, CGC
  • 3:00 p.m. Adjourn

A link to join this virtual event will be sent to registered attendees before the event.

Please contact Alice Bailey with any questions at (215) 590-2920 or 22q@email.chop.edu.

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